Powered by Blogger.

I shouldn't be responsible for link ups.

Penulis : Unknown on Friday 29 March 2013 | 09:43

Friday 29 March 2013

Let today be known as the day we all realized that I should not be responsible for any link ups.
Ooops.

#backthatazzup Friday!

The purpose: To start our weekend with some fantastic jams.
The station that inspired it: "Back That Azz Up" on Pandora Radio.
The rules: Link your jams up!

So, at the end of your Friday posts simply add a YouTube video or a Grooveshark play button of your song choice for the day and then link up with me so we can all get our weekend started off right with only the greatest jams of our time.

Happy Friday!

Grab a button, pick your jam, link up and let's get this weekend started off on the right foot!
I wore yoga pants


My jam is straight from the Back That Azz Up station.
Pony by Genuwine on Grooveshark

Link yours up too!

comments | | Read More...

The Death of Robert Saylor

Penulis : Unknown on Thursday 28 March 2013 | 18:08

Thursday 28 March 2013

Robert Ethan Saylor, a young man with Down syndrome, passed away at a movie theater in January. He had been there with an aide watching Zero Dark Thirty. After the movie ended he wanted to see it again. A theater employee told him he needed to leave the theater and buy another ticket if he wanted to watch it again.

He refused to leave the theater; at some point his aide left to get the car, and the theater employee called mall security. Three off-duty police officers working as security guards arrived. Witnesses say when they tried to remove him from the theater he verbally and physically resisted those attempts.

The situation escalated and Mr. Saylor ended up on the floor, on his stomach, and handcuffed. The officers say he was only down on the floor for 1 or 2 minutes and they noticed he was having trouble breathing and took the handcuffs off. Attempts to revive him were unsuccessful.

The medical examiner's findings were that he died of asphyxiation and ruled his death a homicide. The police department had an internal investigation. A recent grand jury rejected criminal charges and decided no crime took place.

How can a man die on the floor of a movie theater and no one is charged? No one is held accountable?

I'm not saying nothing should have been done in the situation. I'm not saying he should have been left to watch the movie again without paying. Just because he had Down syndrome doesn't mean he should have received a free pass to do what he wanted to do.

But the situation didn't have to get out of control like it did. He didn't have to die. A little patience? A little common sense?

Reports say his mother was on her way - whether the police officers were made aware of that fact or not, I don't know.

The grand jury proceedings are secretive in Maryland, so I don't know what the 17 witness statements showed, but a few articles have quoted a witness as saying Mr. Saylor was saying he wanted his mom. Surely these officers could see that he had Down syndrome. Surely they could conclude he had an intellectual disability.

According to this article, it states "Law-enforcement manuals say never to leave suspects handcuffed on their stomachs, because the risk of sudden death by asphyxiation is too great." Yet Mr Saylor was left for '1 or 2 minutes' in that exact position.

The National Down Syndrome Congress, released this statement after a meeting with the Department of Justice and various other agencies, saying that Mr. Saylor's civil rights were violated and also called for an independent investigation.

Please consider signing this petition requesting an independent investigation.



post signature
comments | | Read More...

Thankful Thursday

Today I'm going to talk about some things I'm thankful for.
Because the words "thankful" and "Thursday" both start with the same letter, duh.
And also maybe because I have a few things to be thankful for. Even if it doesn't involve turkey, stuffing and family drama induced intoxication.

First thing's first -

AndrĂ© champs. Thanks for being you, champ. And thanks for making me so damn awesome at champagne beer pong last night. I owe you one, or 4.


Kelly (yes, with a Y, dammit.), Panda & Barb. I don't even know if you three will ever read this but I just want to thank you for being the best damn friends I've ever had. I love you three more than you'll ever know.


Random green coozie. Thanks a bunch for sticking around and keeping my drinks cold in public. Even though I'm pretty sure I've lost you, you have been my favorite little drinking buddy lately.

ZzzQuil. Where have you been all of my life? I love you. I love sleeping with you. (badum chhh)



Boss man. I sure as hell hope you never, ever, everrrrr read this. Like, ever. But thanks a heap for giving me tomorrow and Monday off with pay. I will be sure to make a few extra bad decisions tonight and Sunday. Yep.

Blake Shelton. Your new album is amazing, home slice. Congrats and thanks for the jams these last two days.


Rodan and Fields Soothe. Holy, holy balls. WHERE have you been my whole life? Seriously, though. You have been keeping my skin so smooth and breakout free and I am forever in your debt. I've always wanted to be able to use products like Proactiv but my damn skin has always been too sensitive. You are the perfect skin care line for my pissy skin.

Seriously people, this facial care line is amazing. As someone who has gotten more chemical burns from facial products, take my word for it - this is a miracle! Go visit the amazing Joanna's Rodan shop and check out all of her products. If you need help figuring out which line is for you, email her. She's amazing to work with! I am a forever customer, for sure. 



Lastly, but not least, #backthatazzupfriday. I can't wait to see your fine ass tomorrow!! Who's linking up?

comments | | Read More...

Molecular Roots of Down Syndrome Unraveled

Penulis : Unknown on Wednesday 27 March 2013 | 15:18

Wednesday 27 March 2013

Researchers have discovered the cause of impaired learning and memory in individuals with Down syndrome. A protein called SNX27 is at the root of the decreased cognitive function. A person with an extra 21st chromosome produces less of the SNX27 protein which disrupts brain function.

It sounds so fascinating that they have been able to pinpoint the why and where of cognitive deficits -explicitly to this protein.

Further research has shown when this protein was restored in mice they showed improved cognitive function and behavior.

How exciting is that?!

For people who don't have 20/20 vision they can wear glasses, contacts, or have laser eye surgery to improve their vision. For people that have hearing problems they can, if appropriate, have a cochlear implant, or wear a hearing aid, to improve their hearing. Now science could be on the cusp of figuring out how to improve cognition and memory for people with Down syndrome. It's the same thing - improving their quality of life. I think it's so wonder that research is being done on this subject at all.

We aren't talking about a cure here; this just could be something that has the potential to help people with Down syndrome have improved cognition and that could help them in so many different ways in their lives.

Kayla struggles so much with academics ... if they found a way to tweak that for her? To bring that protein back to typical levels? Oh the possibilities...

This will be research I hope to hear more about in the very near future.

 post signature
comments | | Read More...

How I ruined my best friend's romantic evening.

It's Wednesday and I have absolutely no motivation to talk about celebrity eff ups today. The reasoning for my lack of motivation? Well, I went along searching for what happened over the last week and really all I was able to get was another shirtless photo of Justin Bieber, some more bullshit about Lindsay Lohan, and an almost Britney Spears nip slip. Yawn. I'll pass.


So, moving on.
Today I have to write about how I single handedly ruined one of my best friend's greatest nights ever because only something like this would happen to someone like me.
Seriously though, completely ruined one of the most romantic nights she's ever seen.

Quick backstory; This friend, or Kelly, she lives in the same apartment complex as me with her boyfriend. We became best friends since living in the same complex, obviously, and we spend quite a bit of time together.
She motivates me to make bad school night decisions, basically.

Yesterday was like any other Tuesday, I got off work and headed to Publix to pick up some typical groceries (aka wine), and then I headed to my apartment. Parked, got my normal cardio on by stacking all 8 grocery bags on every limb I've got, and then made my way inside.
I opened my fridge to put my bottle of wine in there, it needed to be chilled by the time I got back from walking the dogs, but the damn light didn't turn on. Ok, that's odd.

I then go around my house flipping switches, plugging things in, trying to figure out what the hell was going on because I knew I paid my bill earlier this month.
Or did I?

Well, I couldn't check on my computer because, you know, I had no mother effing power.
So I check on my phone, which has a whopping 32% battery life left.
Yep, March 9th payment to Progress Energy.
Ok, so I did pay my bill... What's the deal then? I could see lights on at my neighbors, why is it just my apartment?

Obviously a phone call to Progress Energy needed to happen.
If there's anything in this world I loathe more than coming home to an apartment with no power and a cell phone that's quickly dying, it's picking up the phone to call companies like Progress Energy and the cable company.
Ring, ring, "the next customer service representative will be with you in 8 minutes"...

Progress Energy guy: How can I help you, Miss Yoga Pants?
Me: My power is off... and, um, I paid my bill... which I'm guessing you hear a lot, so, you probably don't believe me... but I did and it's off and my apartment is getting hot and my wine fridge isn't chilling.
Progress Energy guy: Let me take a look at your account. *tap tap tap* *tappy tappy tap* ..............

(I imagine this guy was playing a quick round of paper football right here)

Progress Energy guy: Oh, well... Um... It... Oh.
Me: Yes? Oh, what? Where did my power go?
Progress Energy guy: It appears your payment was applied to a different account.
Me: Excuse me? -insert every expletive under the sun here-
Progress Energy guy: We will get this taken care of, bitch ma'am, just one moment please.

(More paper football here... maybe a snacky or two)

Progress Energy guy: Good news, we will be expediting this and late charges any charges accessed to this have been removed.
Me: Oh, ok....... so..... when will I have power then?
Progress Energy guy: Sometime by the end of the day.



So, I yell some more expletives and hang up the phone.
I decide I'll relax and take a nap, surely by the time I wake up I'll be in business. I mean, after all, it was their fault my power was off...
Wake up 2 hours later, nothing... no power. And my phone has 6% battery left.
To say I am pissed is a vast understatement.

Here's where Kelly comes in;
I text her to ask if I can come charge my phone in her apartment - no response. She's the type who always responds instantly. If she were a guy, she'd be horrible at playing hard to get.
Then I call her... no answer.
Ok, maybe Kelly's napping.

10 minutes later she calls me and tells me to come on up, the door's open, but don't mind the mess.
Both of our apartments are always a mess, so why would I even care? I just wanted power and maybe a cold glass of wine or beer. Or tequila shot. Whatever.

I go upstairs, open the door, and this is what I see:
Rose petals, candles, wine, oh... and this:
And then they asked me if I wanted to add anything to their sushi order they were placing.

Yep. Romance from a movie, staring the worst friend ever, yours truly; Whitney Yoga Pants.
Shit.
In my defense, she didn't tell me. And I was so in shock when I walked in that I didn't know what to say or do.

And that, my friends, is the story of my life.
Or really just how I ruined my best friend's most romantic night.


*edited to answer some questions: Yes, her boyfriend set all of this up for her. Yes, her boyfriend was there when I walked in. They were both sipping on their romantic wine together when I showed up.
comments | | Read More...

Humble Pie

Penulis : Unknown on Tuesday 26 March 2013 | 08:44

Tuesday 26 March 2013

I never know how to start posts when I have something weighing on me that I want to put into writing. It's funny, my friends who aren't familiar with blogging have little to no idea that there's actually a community of people who also do this stuff and it's not just my blog thingy. So, when something from this community has a personal effect on me, it's really hard to explain to anyone who doesn't blog. Mostly because I have a complex and believe that I probably sound ridiculous when I mention that I'm emotionally effected by something that's happened to someone I've never actually crossed paths with in real life.

That's where I am today though. I'm feeling emotionally effected by some things I've seen floating around the blogosphere and the reason it's effecting me is because I can directly relate these emotions to my past experiences. More specifically, middle school and high school. Yesterday I, admittedly, shed literal tears at the expense of some posts that had me directly revisiting these old, dusty emotions I haven't seen in (thankfully) a really long time.

Now, I know I'm not the only person who was ever bullied or ignored in grade school. I mean, a strong part of me believes that a lot of us here in the blogging community were, because that's how I got to grow fond of writing. Even if, at the time, it was Live Journal I was writing to, it was the same concept. I'd get home from school feeling so small and insignificant, I'd open my laptop and that's where a good majority of my friends resided. It was my happy place, they were the only ones excited to hear about my day, and even if now I am no longer forced to deal with the pain of being ignored in such a way, I still feel this is a happy place for me.

So, what would I do if I realized that a large group from this happy place would turn their backs on me and make me feel those horrible small and insignificant feelings if I were to ever cross paths with them in public? Well, in short, I'd be mortified. And hurt. Most of all, completely and entirely heartbroken. Hell, none of this even happened directly to me and I'm mortified, hurt, and completely heartbroken, because yesterday I was mentally forced back in the cafeteria of my high school. Yesterday I was desperately searching for a pair of eyes to meet mine, inviting me to sit down and eat my lunch in a seat, as opposed to a bench alone in front of the school which I was inevitably forced to. 

Am I saying that I am an angel and have never personally been a mean girl? Absolutely not. When you are treated the way so many of us were in grade school, it's almost inevitable that we will have a streak of evil that runs through us from time to time because our defenses were forced to stay up and strong for so long through all of that pain. Does it make me proud? Not even close. If I could erase every negative and/or judgmental thought that has ever run through my mind I would do it in an instant, but I can't. All I can do is realize that I am nobody because that's just what I am. I am a nobody who has zero business being nasty to anyone, just as those other mean girls never had any business being nasty to me.

I am a firm believer that everyone has something to give and if we count out people just based on what they wear, what color or shape they are, where they live, or any other damn thing that isn't similar to what we have going on, it's going to be a very lonely life. At the end of the day, the most loyal people I have found in my life are the ones who teach me things. They teach me to grow, they teach me to expand my horizons, most of all they teach me to be a better person.

I guess what I'm trying to get at here today is that, we shouldn't be the person who follows behind the mean girl who never got over the grade school nonsense, because at the end of the day she is no better than that mean girl who forced you sit alone. 

Humble pie is a calorie-free dessert that tastes more delicious than any amount of sugar could possibly taste. No one ever got criticized for staying true to their heart and having sympathy and humility for others and I think maybe sometimes we need to stand back and realize that.

This is starting to get long so I'm going to leave on one last note, a quote from H. Jackson Brown Jr.
“Every person that you meet knows something you don't; learn from them.”

That's all I've got. Go be nice to people, please.
Spay and neuter your pets. 
I'm out.
comments | | Read More...

"Voyeur"

Penulis : Unknown on Monday 25 March 2013 | 17:00

Monday 25 March 2013

"Voyeur" 

You may already know.
Maybe you can see me.
Privy to the nerve
of you sharing time reserved
exclusively for singularity.
Fancy me.
I bear witness.
Bear with me.
Lament with my desire
to observe your excavation.
Tools fashioned with the intent
to push past your extent.
Extensive stints before deep breaths.
I'm to wonder what is left.
Right hand clutching the mantle
as you ravage and dismantle.
You mangle as if entangled.
Lips clasp with every breach;
yet you continue to reach deep.
I sit and watch with every move.
You tug and yank;
probing in need of reprieve.
No doubt I should leave;
lest I implore your detection.
Your inflection piques my interest.
Can't see past you for days.
Legs emerging from their quilted maze
squirming beneath stained sheets.
They reach for the ceiling
in yearn of the skies.
They flail and flutter
in response to your cries.
I'm already hung
but you're not done yet.
Hair ringing wet.
You're nearly set.
Perspire in pleasure.
Your motivation measured
by what barely merits murmur.
How long I've hoped to circumvent
secrets that unlock your intent.
Is it I that you lust after?
Inquiry addressed by laughter
but I've serious all the same.
Yes. I hear my name;
but what features are envisioned?
I can't help but listen
as if the moment would change.

Nonetheless, 

Your flowing night gown
is more short skirt than dress
given this current encounter.
Counter clockwise circulatory shifts
between the moist cherry
and her two swollen lips.
Tight grips follow finger slips
and I'm sure I've lost mine.
Knees bent to this cold pine
breathing hard behind this door
and you plunge in; asking for more.
You bypass moans for screams.
Lust so smooth and thick
flowing like an endless stream.
Freshest furnishing of cream.
I sit her stirring
while you lay in silence.
Violent the means of my intent;
but not nearly as terrible
as the abuse that you rile in.
Compiled with the fact
that the air we now share is thin
is my overlooking your inviting grin............
................................................
.....guess that means I can come in.

Written By: Devin Joseph Metz 
comments | | Read More...

Shout Out To Mexico

Fun fact for everyone to start off this Monday:
When your blog sees 10,000+ pageviews in one day (when you're used to, oh, 3,000ish), you will feel like a rockstar and you will act on these rockstar feelings all weekend.
And then you will feel sleepy on Monday.
Or maybe that's just me...

This weekend raced by fast. I have no idea where it went, it's all kind of a blur, but I'd like it back, and I'd like it back right now. Please.
Thank you.


If you haven't heard, there was a super storm in sunny Orlando yesterday that took a couple trees out of commission and also took out some people's power, as well. Apparently.
I say "apparently" because I didn't see, or feel, an ounce of rain all day yesterday.
And I spent the day at Epcot.

To this I say, shout out to the tequila bar in Mexico for keeping me dry.
And hydrated.
Or dehydrated, if you want to get technical.

Yesterday will forever be known as the day my friends and I dodged the great March 24th storm by sitting in the La Cava del Tequila bar at Epcot for 2.5 hours.


Other shout outs I feel the need to give out today go to:

- RedBull's Limited Edition flavors. Specifically the cranberry and blueberry. I'm re-addicted to theBull all over again and I don't hate it. Even if my bank account begs to differ.

- Pink sparkly hats at Disney that make me want to star in a High School Musical movie. I could absolutely pull it off. And I'm only kind of talking about Zac Efron's clothing.

- Sangria Sunday. No need to elaborate on this shout out.

- Amazing friends. I'm a very lucky lady to be constantly surrounded by so many amazing people.

- Pink drank. Because pink is way prettier than purple. And I think also because it doesn't contain any actual forms of drugs. Win.

- VIP dock seating for the Epcot fireworks show, which was so bad ass and I'm just happy to report I still have my eyebrows. I began worrying when I felt the heat coming from the firesplosion in the middle of the lagoon.


Really, that's all I've got for you today.
I'm off to battle the intense Monday's I've got going on right now.


Oh, PS. Extra shout out to the word "ragout" for making me look like a total dumb ass yesterday. Maybe I am a natural blonde.


As always, linking up with Sami.
comments | | Read More...

I really do wear them to work a lot.

Penulis : Unknown on Friday 22 March 2013 | 07:15

Friday 22 March 2013

Hey, I'm Whitney and I'm going to make this real short and sweet today.

Sometime around noon yesterday I got an email from a writer for the Washington Post asking to interview me about yoga pants. Obviously I said yes and now today I'm being quoted in the Washington Post.

I instantly told my two best friends and you know what their responses were? "Let's celebrate your blog thingy" so last night we did just that. We celebrated my blog thingy and we celebrated it hard.

I feel like a bus wreck today thanks to celebrating this very small victory but this isn't going to stop me from backing my azz up, no it will not.

Hey, also, it's cool they think I'm 24. Probably the best part.




#backthatazzup Friday!

The purpose: To start our weekend with some fantastic jams.
The station that inspired it: "Back That Azz Up" on Pandora Radio.
The rules: Link your jams up!

So, at the end of your Friday posts simply add a YouTube video or a Grooveshark play button of your song choice for the day and then link up with me so we can all get our weekend started off right with only the greatest jams of our time.

Happy Friday!

Grab a button, pick your jam, link up and let's get this weekend started off on the right foot!
I wore yoga pants


My song this week is brought to you by my new #singlelife:
Still Not A Player by Big Pun on Grooveshark
comments | | Read More...

A Fact, A Fallacy, A Photo

Penulis : Unknown on Thursday 21 March 2013 | 09:22

Thursday 21 March 2013

A Little Moxie is hosting a blog hop for World Down Syndrome Day: 3 for 21.

The instructions are easy:
Post a fact
Post a fallacy
Post a photo

These can be "related to Down syndrome, to the spirit of inclusion, advocacy/awareness."

Fact:  People with Down syndrome are not always happy. They are individuals with a wide range of emotions. Example: Yesterday morning Kayla was not happy with me at all when I said she couldn't wear flip flops to school. This morning she was mad that she couldn't wear gloves (because I have no idea what she did with them) and was refusing to get up off the floor and walk to the bus stop. She has feelings beyond the range of being happy and content with everything in her life.

Fallacy: People with Down syndrome can't learn, or reach a plateau and stop learning. (Hint: Just like everyone else they'll only reach a plateau if not given an opportunity to learn.).

Here is Kayla reviewing what she learned about the Antebellum Period:

And a picture of Kayla:


IMG_6878(2)
  post signature
comments | | Read More...

Dude Answers to Chick Questions: First Edition

I was slightly stumped at what I wanted to write about today and then I looked at my sweet, light pink, ruffley decorative towels and a lightbulb went off. The only problem with this lightbulb is that I was going to need the help of a male to pull it off. Ok, easy enough, I know a bunch of those. Oh, not so easy, how do I explain to my guy friends why I'm bothering them with all of these questions? Because none of them know that I do this blogging thing in my spare time. Small details, they'll probably think I'm just being Miley Whitney.

Today I bring you some of my deepest male questions answered by one of my best guy friends...


The icebreaker:
Why do you use decorative towels to dry your hands?
- "Because we don't really care about decorations. And maybe because it's just a towel."

Well friend, maybe my pink ruffles don't really care about you! And maybe you're just a dude.


Moving on...
How successful is the "can I buy you a drink" line?
- "Probably 60-70%. Depends on if they are actually interested or if they're just looking for free shit."

Damn... This one was slightly more on point than I imagined it was going to be. Maybe I'm not as sneaky as I assume I am.



If you could be a girl for a day, what would you do?
- "Get away with stuff just for being a girl."

Ok, back on track and off point. I'm pretty sure if a guy could be a chick for a day, they'd probably just stand in the mirror and stare at their boobs all day. That's my story and I'm sticking to it.



Can you tell when a chick sucks at walking in heels?
- "Yes."
Does it make you laugh?
- "If it's really bad, yes."
Would you buy her a drink?
- "Probably. Why not?"

There it is, friends. You can look like an idiot and still manage a free drink or two. Maybe he wasn't so off on that last answer after all.



Do you ever dance in the mirror?
- "No, weirdo."

I'm calling 110% bullshit on this one and if you don't, well, then I think you're the weirdo, friend.



If you opened a chick's fridge and she had a box of wine in there, what would you think?
- "I don't drink wine but why is it in a box?"
What about if you opened her freezer and there was an 18-pack of Bagel Bites?
- "Her diet sucks."
So after discovering both of these things you wouldn't think she's the most awesome chick in all of the land?
- "I mean, I wouldn't judge her just off that, maybe the box of wine isn't hers..."

Pretty sure I definitely just got judged. He's lucky I love him like a brother or I'd kick him right in the man jibbs the next time I see him.
Also, to this I say, if you don't want drink boxed wine with me, you can go home. Bye.



Are beer goggles a real thing?
- "Yes. Absolutely."

I didn't really need a guy to explain this one to me, so it's a good thing I got zero elaboration on it. Not that there's really much to elaborate.
Ok, let's move on.



Do blondes, do they like, really have more fun?
- "I've seen both."
But you need beer goggles for the brunettes, right?
- "You are crazy and to answer the question, both, again."

I probably should have used a stranger for this interview. My friends know me too well, apparently.


And there it is, some of my deepest questions answered from a male perspective. I think I'm going to play this game the next time I go out and get a collaboration of drunk male thoughts. Yep, that's happening this weekend. Well, it is if I remember to do it. And if I remember to write down my answers. Someone remind me.

What questions would you ask a dude?
comments | | Read More...

Who I Am

The International Down Syndrome Coalition for Life's campaign for WDSD is "Who I Am" - based on a song by Sarah Conant.

When I asked Kayla, "Who are you?" She said, "I'm Kayla!"

So there you have it. She's Kayla. Just Kayla.

But if you asked me who she is I'd say (besides the obvious of being my daughter and a great big sister) I'd say she's an almost 10 year old girl who is:

loved
valued
wanted
included
friendly
funny
creative
imaginative
strong-willed (because that sounds more positive than stubborn!)
confident
independent
defiant
moody
challenging
opinionated
adventurous
determined
world-traveler (we went to Denmark and Sweden last summer)


I'd tell you that she likes
popcorn
cereal
pizza
ham
cheese
yogurt
sleep-overs
roller coasters (she doesn't get that from me!)
water parks
beaches
playgrounds
being outside
roller skating
movies
hotels (she's always saying "I want to go to a hotel to sleep.")
friends
drawing
painting
going to the ballet
playing dress-up

That's Kayla. She is who she is and that's all she needs to be.

Here she is all dressed up when we went to the ballet to see Snow White.

 Enjoy this video, set to the song of Who I Am...

 post signature
comments | | Read More...

Awareness, Acceptance, Advocacy, Action

Penulis : Unknown on Wednesday 20 March 2013 | 11:57

Wednesday 20 March 2013

Tomorrow is World Down Syndrome Day; and just like in October - Down Syndrome Awareness Month - it is about raising awareness and acceptance for those with Down syndrome.

Where do we go after raising awareness? I have been raising awareness on my blog for 7 years now, and on FB for about 4 or 5 years. In raising awareness I feel like I'm preaching to the choir. The majority of the awareness seems to happen within the Down syndrome community.

October was first celebrated as Down Syndrome Awareness Month in 1981. That was 32 years ago. I gave birth to Kayla in 2003; so at that point there had been 22 Octobers recognized as DSAM. Yet I had never, ever, not once, heard of Oct as DSAM ... until I had Kayla.

I think with the explosion of social media people are more aware now ... we share on blogs, twitter, FB, and whatever other means ... and our friends who don't have children with Down syndrome see all this posting about DSAM and WDSD...so they are now more aware. Society is becoming somewhat more aware.

And as Down Syndrome Uprising put it in this post - "People are aware of Down syndrome ... they know it exists." I agree. People are more aware now, even though there is still a lot of misinformation and pre conceived notions about Down syndrome.

But is the acceptance there? Somewhat. No longer are parents told to place their newborns in an institution, and kids with Down syndrome are now allowed to attend public schools; something they weren't allowed to do years ago. We aren't at full acceptance yet (and unfortunately we may never be because people fear what they don't know and they fear differences) and can we say we are even headed in that direction when companies create prenatal screening tests called MaterniT21 explicitly targeting babies with Down syndrome by identifying them in the womb much earlier in pregnancies?

One way we can start with truly accepting individuals with Down syndrome is to stop reporting certain types of news stories. When those type of stories cease to be news-worthy it will feel more like acceptance. Because people with Down syndrome will just exist in society along with everyone else, and it won't be a big deal that someone with an extra chromosome was elected prom king/queen. I said this same thing almost 5 yrs ago, and yet these stories seem even more prevalent now. 

I'm trying to become a better advocate for not only my child, but for people with Down syndrome in general. I've attended workshops and hope to attend Partners in Policymaking. Change needs to happen. People with disabilities can't have more than $2000 in assets in their name or they will lose benefits. That's why it's important for things like the ABLE Act to pass legislation. Can you imagine having to micromanage your money so much so as to make sure you don't have more than $2000? How can you ever save up for anything?

As for action ... I started transferring Kayla out of her school last year and informing the school district she will attend her neighborhood school. The same school all the other kids on our street attend; she doesn't need to be bused miles away to a different school. And Kayla is visible in the community; we take her everywhere with us. She is included. She belongs.

But more action needs to come from society in general. Action of recognizing individuals with Down syndrome as just that - individuals who have the same rights and deserve the same respect as every person. They are human beings and don't need to keep being identified by having Down syndrome. They have a rightful place in society just by existing. They don't need to prove their worth or value any more than you or I do.

 post signature
comments | | Read More...

Whitney's What the? Wednesday

Here I am again, back in the center, stressing about the time of day I'm posting at. Then I remembered what my boo Jesse McCartney once told me when we were having a personal conversation. He said, "don't stress. don't stress. don't stress. just tell him to the left left left.", and I just thought about it, took a breather, and here I am.

Let's chat about some celebrity gossip, shall we?



Rapper Lil Wayne just got out of ICU from his overdose on my new favorite word, Sizzurp. (Seriously, what a great word. I've been trying to use it in every day jargon.) Thanks to TMZ I spent way too long stressing over this overdose on Saturday night because they reported that he was being read his last rights and that he was on life support and all of these horrible things which all turned out to be a big, fat, Kim Kardashian ass sized lie. Can I get an amen?
I'm thinking rehab with LiLo is Weezy F Baby's next stop but what do I know? I imagine getting this one off the sizzurp is going to be about as difficult as it was to find a photo of him that wasn't going to scare people off of my blog. He's like a blog scarecrow. Wait, what?


Speaking of LiLo, homegirl got glitter bombed on her way to court the other day. (Anyone else positive the bomber was Ke$ha?) Of course she was like 30 minutes late, sporting her favorite zero-shits-given outfit, and managed to dodge yet another jail sentence. And by dodge a jail sentence I mean that she agreed to some more rehab, a little dash of psychotherapy, a touch of garbage picking up, and a tiny little slap on the hand.
I bet she still has glitter in her hair.


It looks like another Hollywood couple bit the dust this week. Katy Perry and John Mayer have reportedly broken up. Again. Ho hum. I'm actually surprised that Johnny boy was able to keep it in his pants for her this long, she should get a medal or something because I think this has been a record for him.
I'm not really too sad about this break up. One, because Katy Perry is a totally dime and I'm sure she's got a million of dudes dying to motorboat her and two, Johnny Babe can come sing me a lullaby now.


This isn't really news, or shocking, but another Teen Mom star is up to no good. Farrah Abraham almost hit a cop car while she was drinking and driving, and she blew a whopping .147 which is almost double the limit. Oops. The best part of the story is that she had to go be all dramatic on Twitter, trying to insinuate that the story is a lie.
You know, because the breathalyzers cops use typically aren't accurate at all. Or always.


You know what's cool about being a famous athlete? You can cheat on your smoking hot wife with multiple strippers and bartenders, go through a uber public divorce, and still manage to find yourself a girlfriend. That's right, someone is dumb enough to date Tiger Woods and she's also an athlete. I'm not really sure where this chick's brain is but she lost it somewhere and she needs to go find it before Lil Wayne scoops it up and makes some Sizzurp out of it.
How long until Tiger's wood can't stay in his pants anymore?

comments | | Read More...

The kind of sad that just takes time.

Penulis : Unknown on Tuesday 19 March 2013 | 10:53

Tuesday 19 March 2013

I'm aligning left today. Don't ask me why, I just am. I might just bebop around my alignment choices for the rest of bl-eternity and I'm okay with that. For those of you who asked: Yes, I really do get comments and emails about the alignment of my blog posts, in addition to remarks about the type of font I use, the size of it, the color of it, etc. etc. Can't please them all, I say. I'm just happy to be here.

Also, I really confused myself by posting late last night and now I don't know if I'm supposed to post again today or wait for tomorrow, or what. I don't know how I've managed to keep up with this blog for as long as I have. At times like this I really wouldn't mind a blogging handbook because I have no idea what I'm supposed to do, I'm just going to roll with it.


Anyways, over the weekend I rented the movie 'Perks of Being a Wallflower' from RedBox because I have never seen it before, but I have read the book, and it's been on top of my list movies to see. I didn't really know what to expect because, well, it has been about 10 years since I've even seen a copy of the book and my memory just isn't that fantastic.


Guys, this movie was nothing short of spectacular. In all seriousness, my wimp ass even managed to get a massive cry sesh out of it and I don't think it was the beer I was drinking. I think it really just resonated with me and gave me a lot of hope. Go watch it. It was amazing. Some of the quotes hit me hard, I really love when movies do that to me.


That one in particular. Woof. 


Also, I've spent a good portion of today listening to JT's new album and I've gotta say I'm really digging it. I'd say 90% of it is some serious baby making music but that may also be because I've had a steamy, fiery crush on JT since he had blonde jerry curls and, really, he can do no wrong in my eyes. Pusher Love Girl and Tunnel Vision are my current favorites but that'll probably change once I repeat the album about 80 more times.

Do people still call them albums anymore? Either way, that damn Jessica Biel is a lucky little biatch. Not that we didn't all know that before today.


I think that's all I've got for today unless you want to hear about how I had some chickpeas on my salad for lunch today that changed my life. They really were delightful. Like I said, I confused myself yesterday. I'll get it together one of these. Maybe. Probably not. 
comments | | Read More...

A Glimpse of Independence

The kids and I took a road trip this past weekend. We were eating dinner at a restaurant and of course one kid has to go to the bathroom but the other one doesn't.

When I've been in this situation before I always pause momentarily and wonder what other parents do when they are by themselves with more than one kid.

Do I gather everyone up from the table and we all trudge to the bathroom together? Do I trust one kid to go to the bathroom alone?

Depending on the location and situation I've been letting Kayla go to the bathroom by herself. We were at Bob Evans, so it's a small restaurant with the bathroom easily accessible and viewable. If we were at a larger, more crowded restaurant like Olive Garden or Outback I would walk to the bathroom with Kayla and make Lucas come with us.

So Kayla went to the bathroom and I kept my eye on the door. Just when I thought she was taking too long I stood up to go check on her...and then the bathroom door opened and she walked back to our table. My big, independent girl...trust her...I tell myself. Give her some space.

As we were finishing our dinner it was Lucas's turn to need the bathroom. Of course Kayla didn't want to get up and go in the bathroom. Do I trust her at the table by herself? Do I trust her not to get in to any mischief?

I walked with Lucas to the bathroom, but stood outside the door, where I could peek around the corner and keep an eye on our booth in the middle of the room.

I opened up the bathroom door to see if Lucas needed any help at the sink and that's when I heard Kayla's voice. I couldn't hear what she was saying but wondered what she was doing and who she was talking to.

I peeked around the corner and that's when I saw her. She was at the counter holding her cup up and this time I heard her clearly, "I have a refill please?"

She had chocolate milk, a rare treat, and decided to help herself to some more by asking anyone behind the counter for a refill.

I had to smile. She knows we don't usually get them a refill on drinks. I don't know if she decided to go to the counter specifically because I was gone and she wanted to get a refill before I could say no, or if she just finished her milk and wanted more and took it upon herself to get more.

Either way, I loved being on the sidelines and watching her be independent...going after what she wanted...with confidence and independence...even if it was just chocolate milk.

And yes, the waitress did bring her a refill.

 post signature
comments | | Read More...

Must Take More Baths

Penulis : Unknown on Monday 18 March 2013 | 18:11

Monday 18 March 2013

Oh, looky here. Looky here.
It's now 12 hours after I typically post and I'm just now deciding to show my face around here. Sorry about that. I assume most of you have probably predicted the reasoning behind my absence today, especially if you were around Twitter at all, so I'm not sure I need much of a weekend recap. Especially if you graced Twitter at all during it. All I know is I have a golfball-sized bruise on my right arm and I was afraid to breathe on the elevator today, in fear that I might still smell a liquor store. 

Anyways, I'm not really used to this night posting stuff and I don't know what, exactly, I'm going to write about. I'm just shooting from the hip tonight. Hope that's okay.
I'm coming to you tonight from a pink bath of Lush. And by Lush I mean an actual Sex Bomb from Lush.

Don't worry, I don't actually have my computer in the bathtub with me, though I'm not entirely sure why I don't. I have a lot of faith in this wine wrack doo-dad my wine is currently sitting on. And, really, a lot less faith in my ability to hold this phone of mine over a small body of water for any given amount of time. If this never gets posted, we know why. If it does, have a glass of wine for me.

I had a bit of anxiety before I hopped in this bathtub and it's suddenly disappeared. Why is this the first time I've ever taken a dive into this thing, anyways? I'm not sure if it's the Chardonnay, the lavender from the sex bomb, the warm water, or maybe a combination of the three, but I'm feel really relaxed and at ease. Hallelujah. I'm going to do this more often. Someone please hold me to that. 
I don't imagine bathtubs are even remotely this large in the type of NYC apartments I'm going to be living in. Yes, I really need to take advantage of this while I can.

Speaking of wine, how am I drinking right now? Even if it's just one glass, thinking about how I felt when I woke up this morning... well, I must be crazy. Yes, that. We already know that though. Damn you, St. Pat, for holding your day of drinking on a school night. I really should have drank water last night. 

I've recently gotten some slack for writing my blog posts centered. I have been testing out both ways lately and I can't figure out if I  really have a preference. I don't know why I'm writing about this right now, but I am. I guess I'll make a choice one of these days. If you have thoughts on this, feel free to chime in. 

I think I'm going to go now. This is the most random post in the history of this damn yoga pants blog. Maybe I'll recap my weekend tomorrow, maybe I wont. Time will tell.

Hold me to taking more baths, this has been fabulous. 
comments | | Read More...

Blogiversary Crossroads

Penulis : Unknown on Saturday 16 March 2013 | 19:29

Saturday 16 March 2013

It's been 7 years since I started blogging. A 7-year blogiversary today. When I started I had no idea how long I would blog for; not sure if I thought I would even make it to 7 years.

When I started, Kayla wasn't quite 3 years old ... and now I have these 2 sweet kiddos:

I feel fortunate to have made so many connections throughout the years; and met so many great families in person. I think I've made some friendships that will last through the years.

Over the years I've tried to remain true to what my blog was when I started it. A place to share our life with friends and family ... and raise awareness of what life is like raising a child with Down syndrome. I realize that our experience is different from everyone else's experience raising a child with Down syndrome; but hopefully giving a glimpse of our life showed the normalcy of having a child with Down syndrome. Blessings and challenges just like there are raising a typical child.

I've used my blog to advocate for Down syndrome awareness and I hope after 7 years I've done a somewhat decent job of that. I think that whoever is still reading my blog has heard it all by now, so what is there left to say? Most everyone who reads my blog is on FB, with the exception of my mom (hi mom!) so I keep posting for her. So she can see the pictures and read the stories about her grandchildren...because she won't see it on FB!

So lately I've been feeling like I'm at a crossroads. To keep blogging, or not to keep blogging. What direction to take this blog...or keep it like it is. Mulling things over. Wondering where, if anywhere, to go from here.

We're almost to World Down Syndrome Day (March 21st) and last year on my blogiversary I donated a dollar for every comment on that post to Plus15 where my donation was matched 3:1. Your comments helped me out at just over $50. So my donation turned in to $200. In addition to donating 21% of my Discovery Toys sales to Plus15, I'd also like to do the comment challenge again as well.

So for every comment on this post I will donate $1 to Plus15 for World Down Syndrome Day and have my donation matched 3:1.

Please consider leaving a comment, even if you're normally just a lurker :)

 post signature
comments | | Read More...

I am not a bad ass.

Penulis : Unknown on Friday 15 March 2013 | 06:34

Friday 15 March 2013

Today is dedicated to those of you who called me brave and/or bad ass yesterday for getting a tattoo, because I am the farthest thing from brave. Or a bad ass. And that's an understatement.

Here's a list of things that scare the crap out of me on a daily basis:


Driving. I hate it, I'm horrible at it. I sometimes feel like crying when people honk at me.

Drive-thru car washes. I'm convinced a monster is going to attack my car one of these days.

An empty shower with a closed shower curtain. There is, without a doubt, always someone waiting for me with a knife behind a closed shower curtain.

Walking the dogs at night. I live in a safe apartment complex that has many street lights, but I assure you someone wants to toss me in their trunk.
My dad says they'd return me very quickly once I started talking.

Things hitting my windshield. You better believe I flinch every time a small leaf hits my windshield.

I cried when I had to get a finger prick at the doctors when I had the flu. I may, or may not, have also adorned the nurse's shoes with a little barf. Oops.

My heart always races a little too fast when I get phone calls from unknown numbers. Obviously it's someone calling to steal my virtue.


That's all I can think of right now, but I know there's a million more.

___

And now it's time for my favorite time of the week...
#backthatazzup Friday!

The purpose: To start our weekend with some fantastic jams.
The station that inspired it: "Back That Azz Up" on Pandora Radio.
The rules: Link your jams up!

So, at the end of your Friday posts simply add a YouTube video or a Grooveshark play button of your song choice for the day and then link up with me so we can all get our weekend started off right with only the greatest jams of our time.

Happy Friday!

So, grab a button, pick your jam, link up and let's get this weekend started off on the right foot!
I wore yoga pants


And here's my choice for this week:
Girlfriend (Remix) by Nsync on Grooveshark
Because if Nsync and Nelly weren't the best duo I don't know what was.


comments | | Read More...

Live Fearless

Penulis : Unknown on Thursday 14 March 2013 | 10:31

Thursday 14 March 2013

When I go through break ups I tend to get a little wild. Not full on pulling a Britney kind of wild, but I definitely tend to shake things up. Some people probably think this is not a good thing but I kind of like it. It makes me feel human. It makes me feel me again. It's all a part of adapting to the change.

I recently went through a break up, by the way. Here's the post if you're new here. Or if you missed it. I'll forgive you for missing it later. Maybe.

As I mentioned earlier this week, I'm working on my pursuit of happiness and I'm trying to make some big changes in my life. Change isn't necessarily something I'm afraid of but it does tend to make me a little more crazy spontaneous and daring. These changes I'm trying to make would put the fear of God in a lot of people but I've been living by one motto lately and that motto is

live fearless.

And that brings us to exhibit A through Z...
My newest addition:
Yes it's real, yes it hurt, yes I realize it's in a very visible place. And to that last part I say, it is easily coverable by a jacket. Hell, even a 3 quarter length shirt.
I love it. Don't rain on my parade.

The amazing Kaitlyn designed it for me. I'm forever in her debt.


I can do this.
And in a year I'll look back and say, "Self, you did it.".
comments | | Read More...

Homework Conversations

I was going over Kayla's study guide for the Antebellum Period with her.

I explained to her that free African-Americans had to wear tags on their shirts identifying them as free. Kayla said 'like me' me and I gave her a look that said I wondered what the heck she's talking about. A few seconds later I glance over at her as I notice that she is preoccupied with trying to reach something at the back of her neck. She was trying to show me the tag that is inside her shirt.

That connection worked because anytime I asked her "What did the free African-Americans have to wear on the shirts?" she immediately remembered "tags!"

~~~

They are studying Plant and Animal Adaptations now. The following was my conversation with Kayla:

Me, "When a whale swims to the south for warmer water is that hibernation or migration?"
Kayla, "(mumble)gration."
Me, "Hmmm? Which one was it? HI-bernation, or MI-gration?"
Kayla, "YOUR-gration."

She did that to me again that night when I tucked her in and asked her the same question. She pointed at me and said "YOUR-gration" in a voice that said I already told you that, Mom!

 post signature
comments | | Read More...

Whitney's What the? Wednesday

Penulis : Unknown on Wednesday 13 March 2013 | 07:40

Wednesday 13 March 2013


Let's start this week off with my favorite sexy boyband man turned solo artist, slash movie star, slash all around marry-me-please man, Justin Timberlake. Who knew he had it in him (and those little CeeLo hands) to fire back at Kanye after Kanye talked smack about the JT-JayZ-Suit & Tie duet? Not me, that's for sure. Maybe it's because I'd be genuinely scared of Kanye intruding on my winning an award in the near future, but I just wouldn't want to stir things up with him.
It's a good thing our Nsync heart throb is nothing like me because he just went on Saturday Night Live and basically told Kanye he was going to let him finish but.... "awww, my hit's so sick got rappers acting dramatic". As if I couldn't love this man anymore, he just keeps on making me swoon. I like to think T.Swizzy got a nice chuckle out of this. I know I did.


If you were unaware, Lady Gaga has recently cancelled the last leg of her tour due to an injury. Monsters everywhere are sobbing while I didn't realize she still existed but, low and behold, she does and she is rocking this injury like it's her job. Which is actually, pretty much, exactly what it is at this point considering she can't really do many strange and bloody piano performances now that she's out of commission.
So, in true Gaga form, she is riding dirty in this gold wheelchair which screams "diva", if you ask me. Do your thing, Gags. 


Real Housewives of Beverly Hills star, Adrienne Maloof, has been up to some frisky business. And by that I mean that she has been cougaring it up with Rod Stewart's cougar bait son, who is 20 years younger than her, for about two months now. I don't know about you but I can't imagine anything that could possibly go wrong with this picture. Except for everything.
And everything is exactly what went wrong. She broke up with him because she needs "a man". Well Adrienne, as they say, "on to the next one". Get your cougar on, girl. 


I wasn't going to mention Tay Tay Swizzy today since I mentioned her last week but, once again, she's in the news and I just couldn't let this one pass by. It turns out some overly enthusiastic dumpster diver woman found a large bag of fan mail addressed to Swizzy and decided it was her duty as a law abiding citizen to go straight to the media with it. Letters adorned with heart stickers and glitter flooded the bag with no hope of Tay ever seeing them. You know, because I'm sure she always reads every single letter that people send her. One at a time. Over a glass of wine. You know, just like I do.
I know, first hand, that receiving mass amounts of fan mail can be entirely exhausting. I just hope she didn't offend any goat fans because I'd really like those videos to keep on rolling out. (insert goat emoji here)


And lastly, probably the worst news of the week. Worse than the 16+ celebrities and politicians who have been hacked (yes, that happened too). Something that I feel personally effected by, because I am a 13 year old teenybopper. It appears that Miley Cyrus and Liam Hemsworth are donezo. Caput. Fineto. They haven't been spotted canoodling in quite some time, which is way out of the ordinary for them, and also I'm pretty sure Liam cheated on Miley which makes me loathe him, despite that gorgeous face of his. All of these things aside, there's been multiple "insider" tips insisting that the ring is off and they have parted ways. Sigh.
I only wish that she would come to terms with the fact that her and I are meant to be best friends forever and ever so that we could do the newly single-and-ready-to-mingle thing together.

And really, I can't go on anymore today. 
I need to go sulk in that last bit of news and pray that Miley doesn't pull a Britney and shave that little bit of hair she's got left on her pretty head.

A moment of silence for Miley and Liam, everyone.....
comments | | Read More...
 
Design Template by blogger | Support by creating website | Powered by Amadoras