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Kid's Deployment Line

Penulis : Unknown on Tuesday 31 May 2011 | 16:12

Tuesday 31 May 2011

Several weeks ago I took Kayla and Lucas on base for the Kid's Deployment Line.

This was a pre-deployment for kids to go through and get a very condensed version of what their parents go through when they deploy.

When we arrived they got their folders which contained information on the location they were deploying to, the mission, dog tags, shot records etc. We had a mini-briefing on the mission and what the country was like.

Then the kids all filed through the deployment line stopping at each station: finance, legal, chapel, immunizations.

There was a visit with the Crime Dog and then they headed in to the big warehouse room to try on deployment gear.





After that we all filed on a bus to take us to the flight line to board a C-17. Once they thoroughly explored that we got on the bus back to the original location where they got their MREs (Meals Ready to Eat) i.e. Lunchables.




 I love this picture ... with the window open and their hair blowing it looks like she is actually taxiing down the runway.



Pretty neat experience for the kids!

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This Memorial Day

Penulis : Unknown on Monday 30 May 2011 | 12:52

Monday 30 May 2011

Today, on Memorial Day, a young man - just 21 years old - will be buried.

About a week and a half ago Cheizray Pressley died while serving in Afghanistan. I didn't personally know him and would have probably never even heard of him if not for the fact that his death made local news. He was from North Charleston, SC. He graduated in 2008 from a high school right down the street from where I live. So when he was killed in Afghanistan, his death made the news here.
(photo copyright by WCSC TV Charleston, SC)
He was in the Army stationed in Alaska and had recently deployed to Afghanistan.

On Friday, May 27, his body returned home when his casket arrived at Joint Base Charleston. Joe and I went to the base to pay our respects and honor this young man.


It was the first time I've ever witnessed, or been a part of, a dignified transfer of remains.
(photo copyright from WCSC TV Charleston, SC)

We lined the streets awaiting the caravan that would follow the hearse from the base to the funeral home.


I was not prepared for how emotional I would become watching the procession leave the flight line.

(photo copyright from WCSC TV Charleston, SC)

First came the police escorts, the motorcycles - Patriot Guard riders, vehicles containing family and friends, the hearse, and more police escorts.

By the time the hearse passed by with his flag-draped coffin visible, I was in tears.

Just 21 years old. He leaves behind a wife and daughter.

His funeral is today.

For a lot of Americans Memorial Day has become just another holiday off and stores with sales.

Let us take a moment to remember all those who have, or are serving, and those who have given their lives in service. Let us remember the thousands and thousands who are currently deployed and not able to enjoy a holiday off.

Let us not forget what this holiday is about.

Rest in peace Private First Class Cheizray Pressley.

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"Ascension: My Ambition"

"Ascension: My Ambition"


I ascend this flight of stairs
in hopes of what may come after;
but I occasionally stumble;
tumbling to the sound of laughter.
They say "A wise man would stay down.
Sit on the steps. Just lay down.
What you search for won't be found.
A lowly pauper can't chase the crown."


I truly detest such statements.
They aren't aware of my intent;
but seek to determine my social placement.
I guess their mentality is of brief extent.
If you've never removed your mask,
don't offer your point of view;
and unless I've outlined my tasks,
don't concern yourself with what I do.


Herein lies a man
with no backup plan,
no contingency clause,
and no controller to pause.


Standing here is a man
completely capable of flaw.
Some of which can't be absolved
because he remembers all that he saw.


In front of you is a man
still learning how life works.
The values aren't always great;
but he knows what life is worth.
His ambition towards his work
corresponds to how much he cares.
He has no lapse in confidence
and he is always self aware.
He can recognize his limits;
but he knows better than to set them.
He's willing to view the distorted image.
That may be why he never forgets them.


This is me.
That's all there is to see.
I'm not a legend or enigma.
Not a God or deity.
I'm just a man in training;
learning as I move along.
Time keeps moving and churning.
I just pace myself and stay strong.


I've no storybook life.
I just claim what I'm given.
I'm that big headed boy
raised by a family of women.
"Daddy wasn't there;"
but that's of little importance.
My Grandmother imparted the utmost care
and made sure that all took notice.
My Mother means the world to me.
She is my closest friend.
She helped me push when I couldn't see
and taught me how to reach till the end.
If ever there were polar opposites,
it would be my sister and brother.
Their arguments are relentless;
but I know they love each other.
My cousin was there for me
every time my heart was shattered.
Although it sometimes annoys me,
I understand why he delves in my matters.
I shared this heart with three
before the age of 24.
Maybe the third wasn't a charm;
but I have faith in number four.
Literature is my passion.
It's my first and true love.
It never pushes me away.
It would rather soothe than shove.


There isn't much left to say;
at least not much that deserves retention.
I'll climb these stairs every day
because there's purpose in my ascension. 


Written By: Devin Joseph Metz
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Families in Maryland

Penulis : Unknown on Friday 27 May 2011 | 19:07

Friday 27 May 2011

There is a precious little girl - Pauline - who has Down syndrome and is available for adoption through Reece's Rainbow.

She had several families submit their family profile to commit to her and all were rejected. Her region has come back with a strict set of requirements for her adoptions. They are making it almost impossible for her to find a family.

Someone who has adopted from her area recently has met her and said she is adorable, calm, and very observant - and needs a family NOW.



These are the requirements:

1. Only families in Maryland!
2. Need to already have a child with Down syndrome
3. Can't have more than 4 children.
4. Need to have a high income (preferably over 100k!) but that sounds negotiable; maybe?

Please help her find a family by spreading the word - the more people that hear about her the more chance she'll have that a family in MD will step forward for her.

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"(Rebel) {Radical} [Renegade]"

"(Rebel) {Radical} [Renegade]"


What lies under this hood
is a rebel.


That's what they call me, at least.
They call me "borderline ghastly,"
they say I'm nasty,
and claim that I do deals with the devil.
They say I'm sporadic.
They swear that I'm frantic;
but I hardly ever act out;
so I don't know why they see panic.


Maybe I am a little manic.
I'm sure to be unstable.
I'm the one that's labeled
for laying in his grave
instead of his cradle.
I misconstrue short stories
and lay ridicule to fables.
Lay me on this table
and cut me open 
if you don't think I'm able.


Tell me what you see.
Look deep inside of me
and unleash that mad man
that you always said I would be.


What lies beneath this cloak
is a radical.


I'm an avid extremist.
I'm far from placid.
My mind pushes past it's apex;
so my thoughts are never flaccid.
Average thoughts are soft serve.
Mine resemble dripping acid:
It bores through and eats away
at all who aren't willing to pass it.
Peculiar things catch my ire
when I sit here at my spire
like how flaming ice
can feel like frozen fire.


I have unorthodox daydreams.
I never question what they mean.
It would appear, or so it seems
that I recall what I haven't seen.
It makes no sense.
It holds no scheme;
but it keeps me going.
It's the post on which I lean.


Maybe I'm off my rocker.
I may appear a little improper;
but I heard insanity was free;
so I stuffed my mental locker.
Does that come as a shocker
or is it clever and bold
for me to be an open book
full of stories that may never be told?


What rests within this shroud
is a renegade.


Conductive class.
Sinister grade
of a destructive past:
Militant made.
Try to palate the contents of my glass.
Go ahead. Drink the lemonade.
Consume my elixir whole
and you'll see how quickly feelings fade.


I'm bright enough to blind;
but I bask in a darker shade.
I left the world behind;
wearing the mask that my shadows made.
I wrap myself within these garbs
that have now become standard issue.
The wiles of friendship are vile.
Don't expect me to say "I miss you."
I turned away from love that day.
I've lost the desire to kiss you.
Just stay at bay. Don't come my way
or I will surely dismiss you.


Deep inside
lies the underline:
Terms that can't be defined.
I am the new design.
You'll never see into my eyes.
We can stand face to face;
but your deducing won't recover
what has already been displaced.


I really don't care if I'm unleveled.
I only seek my sabbatical
in route to where I've often laid;


so label me a rebel.


Call me a radical.


View me as a renegade.


Written By: Devin Joseph Metz

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What I Want Others To Know

Penulis : Unknown on Thursday 26 May 2011 | 09:14

Thursday 26 May 2011

The June issue of the Lowcountry Parent magazine is their special needs issue. There is an adorable girl with Down syndrome on the cover. The cover story is The Bright Future for Children With Down Syndrome. Can I tell you how much I love that headline?! The bright future. For children with Down syndrome. Wouldn't it be nice if medical professionals said something like that?

Another article in this issue is Our Special Stories. They were looking for parents of children with special needs to tell their story. To talk about what they've learned and what they want others to know.

Here is the article I submitted (and in the print edition of the magazine Kayla's picture is used on the index to the story).

I have a daughter who will be 8 in July. She has blond hair and a sparkle in her bright, beautiful blue eyes. She loves school and will be going in to second grade. She has a younger brother who likes to follow her around and do all the things she’s doing. She likes playing dress-up, coloring and being outdoors. Her favorite food is popcorn. She can’t carry a tune, but she loves to sing. She doesn’t know a stranger and will say hi to every kid she passes on the street.

Kayla was born with an extra chromosome on her 21st pair. In medical terms she has trisomy 21. In layman’s terms, she has Down syndrome. The National Down Syndrome Congress has a campaign called “We’re More Alike Than Different.” That’s what I want others to know. That although my daughter has this extra chromosome – this extra chromosome that makes learning a little harder for her, that makes speech a little harder for her – she is more like your child than different. She still likes to do things kids do and she has the same range of emotions.

Don’t look at her, or me, with pity or sadness. Instead, reach out and get to know us. Make friends with us. Isn’t that what all parents want for their children – to be included and valued and accepted for who they are? That’s what I want for my daughter, too. For genuine friendships to grow between her and her classmates.
It can and does happen, if just given a chance. My daughter received this note from a classmate: “Kayla, I love you. You are the friend I’ve been looking for. I was looking for a kind friend. A soaring friend. A BFF. My BFF.”

If I could only say one thing about having a child with Down syndrome it would be this: Look past the extra chromosome and see my child for who she is. A wonderful child who can be a wonderful friend.

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Special Exposure Wednesday

Penulis : Unknown on Wednesday 25 May 2011 | 10:27

Wednesday 25 May 2011

Since Kayla started school I never knew what I was going to get with her school pictures. I wasn't there to make sure she smiled, sat right, hair brushed etc. That was never more evident than one of her first preschool pictures where she had a runny nose. 

Since then she's had a mixture of 'didn't like' and 'like/love' it pictures. The first school pic from first grade was a 'didn't like' and I sent it back for retakes. I loved the retake picture and was so happy wit it! I thought she looked adorable with all 4 of her front teeth missing and a genuine smile!

Then she had the spring pictures (why are there 2 sets of pictures anyway? I don't remember taking pictures two times throughout the school year.)

When she got home from school and I saw that telltale school picture envelope in her back pack I did what I've been accustomed to doing - I held my breath before turning it over. I can't help it. I just have no idea how she's going look for her school picture; especially since she started perfecting a very obvious non-smile by clenching her teeth together.

So when I turned over the envelope and saw her picture through the window I admit I gasped a little bit. I know I'm biased because I'm her mom and all ... but I just thought it was such a beautiful picture of her. She looks more mature somehow. And compared to the earlier school picture you can see her teeth growing in :) Now I don't know which picture I like better!


5 Minutes for Special  Needs

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Not Acceptable

Penulis : Unknown on Tuesday 24 May 2011 | 18:23

Tuesday 24 May 2011

The folks at Spread The Word To End The Word have put together a pretty powerful PSA on the r-word. It airs tonight on Glee, in case you miss(ed) it, here it is:

"The r-word is the same as every minority slur. Treat it that way and don't use it."



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"If I Had My Way"

Penulis : Unknown on Monday 23 May 2011 | 12:23

Monday 23 May 2011

"If I Had My Way"


If I had my way....


Your only memory of yesterday
would be the loving words we say
that quell the fire of "back when;"
gently rinsing it all away.


If I had my way....


Our profound, perfectly explicit wishes
would be smeared against walls
like mist against shower stalls.
Moans would travel down halls.
Unsuspecting ears would hear your calls:
"Baby, stand tall.
Hold me up. Don't let me fall.
Fill me up. Let my thoughts crawl."


If I had my way....


What we strive for
and would surely die for
would be all that we'd have in store.
I would close unnecessary doors
so that I could give you more.
We would lay at the ocean floor;
drowning in our private aspirations
and then I'd invite you to shore.


If I had my way....


I would cater to your wonder.
I would eviscerate your plight
and eradicate your blunder.
I would be your nightmare hunter.
You would treat your past tense
like most treat their common sense:
Cast them among the realm of the forgotten.
They're just links on an old, rusty fence.


If I had my way....


Distance would feel like an option
and not like a death sentence.
Our tattered hearts wouldn't need adoption
and our flaws wouldn't need repentance.


If I had my way....


Every day would impart a new epiphany:
Featuring thoughts of you,
Thoughts of me,
Thoughts of we.
Our foundation would be serenity.
Our walls would be lined with tranquility.
We would be sheltered by divinity;
Basking in this eclectic trinity.


Yes.


If I had my way....


I would stay another night.
I would delay my flight.


If I had my way....


I would stay seven extra days
after the extent of forever,
and the duration of eternity.
You would always be with me. <3


Written By: Devin Joseph Metz
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when will the long-play video community embrace this adventure game i'm making by breathing on you when you can't see me

Went to the attractive Salem, MA the other weekend to participate in the Massachusetts Poetry Festival. Ate a delicious sandwich with pickles in it. Androgynous old people played bluegrass in overalls. There was a statue of the attractive Samantha from Bewitched. No statues of the attractive Darin. Free antipasto, lots of cobblestone. Cold because of the attractive ocean. I could see why you'd dress up in black and put things in a cauldron. Ambiguous suggestions on the train platform. Spoke on MFAs, encouraged people who wanted alternatives to MFAs to just find people on the internet who like to write and read the things they like to write and read. Made an impassioned argument about the absurdity of all writing/reading and its roots in a peculiarly egotistic form of loneliness, a broom knocked against the wall between the soul and the world, blah blah blah. People raised their hands and asked about summer writing camps. A woman in a wheelchair asked, during the Q&A, if we knew that her first book was coming out. A bee played the piano. I told the story of how the attractive Chris Cheney tried to run me over with his car, and how MFA programs encourage this overly romanticized disengagement with the world, but my fellow panelists provided welcome dissenting maturity and stressed that, don't worry, the pursuit of an MFA can be a very adult activity indeed. Later the attractive Gene K. asserted that I was obsessed with cars that have red spoilers. As usual, he's right. Many thanks to the attractive Danielle Jones-Purett for inviting me to the festival/panel.

Before I left Eastern Mass I ate some Indian food. Cold coconut chutney, very refreshing. Friendly cops came in and talked with the dishwasher. Orchids floating in tall glass cylinders. Boxes of copper pots, a sign that says DO NOT OPEN THE BOXES. WE ARE WATCHING FROM CAMERAS. YOU OPEN YOU BUY. Bollywood music videos that rival mid-90s MTV: sexy, corny, so much spent on the video there was no budget for good beats.

Someone where I am just said "The bleeding edge or the leading edge?"
Then she said "It's magnetic. You can take it off or leave it on."

The attractive Gabe Durham visited Northampton mostly while I was away, but we got to hang out a little bit and eat couscous. We talked about plagiarism and American Idol. Recently Gabe interviewed the attractive Chris Bachelder for The Rumpus and then followed up with him on his blog. Lots of terrific probing about wives and dogs. On the bus back from Eastern Mass, it was raining very hard and I was reading the attractive Lydia Davis's translation of Madame Bovary and thinking about doing something called ALL YOU NEED TO KNOW ABOUT WRITING LAVISH "REALISTIC LITERARY FICTION" YOU CAN LEARN BY ATTENTIVELY READING THE LYDIA DAVIS TRANSLATION OF MADAME BOVARY, but maybe I won't do that.

The attractive Dennis Cooper recently and very generously included Look! Look! Feathers in one of his 3 Recent Books I Loved posts. He included a video of me in 2006 in Ashland telling a story about Tom Waits murdering me. Thanks, Dennis!

On June 5th I'm going to NYC to read in celebration of the attractive Chris Toll's new book from Publishing Genius, The Disinformation Phase. Click here for details on the reading. I will post again about it before June 5th gets closer. Gawd there are so many things to post! And here I am just waiting for Massachusetts to realize it's spring. About The Disinformation Phase, I wrote a note in my reading log that says: "Pop sci-fi Lorca waiting in line to mail Tom Waits some tom tom drums and muttering invocations while he waits." So that's two mentions of Tom Waits, which means I should put a picture of him in this post, but I decided to put a picture of Dennis Cooper instead.
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Independence

I'll be the first to admit when Kayla was born I became one of those moms ... a "helicopter mom" ... yes, I hovered over her and trailed on her heels. I don't know if it was being a first-time mom, or the Down syndrome diagnosis. Likely it was a combination of both.

Kayla is impulsive and when she was younger, if given the chance, she would just wander off. She would walk around like she didn't have a care in the world and in fact didn't care if she stayed with her parents or not. It didn't phase her if she walked away from us and we didn't follow her. So I hovered. I had to make sure I kept my eyes on her at all times. She was unpredictable so I had to make sure I knew what she was doing.

When she was around 3ish we had a play date with my MOPS group. It was at the local zoo (which was very small, more like a park with animals and never crowded). There was a playground which is where we were all meeting. The moms sat down and chatted while the kids were all playing on the playground. Except me. There I was trailing after Kayla. I finally decided to give us some space; what fun was I having not interacting with the other moms? So I braved it and sat down with the moms, trying to have a conversation, while every few seconds (or so it seemed) I would turn to make sure I could still see where Kayla was. And then she wasn't there. She was out of my sight. I got up and quickly scanned the playground. I panicked. It's hard to start searching for your child when you don't even know which way they went. I finally found her (obviously) by the bear cages. That experience made me feel that we sure weren't ready for any amount of freedom!

When she started Kindergarten it was very hard for me to let go. She would be gone all day long ... how would she survive without me?! She wouldn't have me there to guide her, make sure she knew where to go, what was going on, what she should be doing, not knowing if she would make it known when she had to go to the bathroom, would she be able to independently go to the bathroom by herself (out of the classroom and in the hallway) and return directly to her classroom. It was hard not knowing what she was doing all day long and if she was able to effectively communicate.

The first week of school the parents brought their kids directly to the classroom. After that week the kids were dropped off at the playground. The Kindergarten classes were the only classes dropped off there, all the teachers were there and it was fenced in. After the first few days I seemed to be the only parent who was still walking my kid through the gate, to her back pack drop-off location and saying goodbye.  Eventually I realized I could let go a little and finally started saying goodbye at the gate. I'd stand and watch her walk right to where she needed to drop her back pack off and run off with her friends. With a twinge of sadness I realized this was the beginning of letting go, of realizing she didn't need me for everything; that there were other people who could look after her and that she could learn the routine of what she was supposed to be doing.

Then we moved to MD half-way through that Kindergarten year. She went on winter break at one school and returned from winter break starting at a different school in a different state.

The car rider line was new to us; they didn't have that at the elementary school in NM. I didn't know how I was just supposed to drop her off and expect her to walk right to her classroom, especially in a new school. It was finally explained that the special ed teachers and/or assistants also wait outside and bring them in to the classrooms.

When she started school here it felt like the same thing ... another state, another new school. New routines, teachers, students, and hallways! I dropped her off in the car rider line where there are teachers greeting each car and helping the students out. But then what? I thought. Kayla is just supposed to walk in this school and know which classroom to go to? How do these other kids know where they are going? I said to the teacher that Kayla needed to go to "Mrs. H.'s" room hoping she would realize that was the special ed teacher and Kayla needed some assistance to get to the right classroom. From then on there was one certain teacher who would keep an eye out for Kayla and always walked her in the school right to Mrs H's classroom.

Then one day in Dec I saw Kayla making her way to the doors without waiting for the lady who always walked in with her. She called Kayla's name but Kayla paid no attention. She looked like she was on a mission.

It dawned on me that maybe Kayla wanted to go to the classroom by herself like she sees all the other students doing but didn't know how to express that. But would she? Would she go directly to where she needed to start her morning, or would she fool around and just wander around to where she wanted to go?

I talked to Mrs. H about it and after winter break we decided to see how it would go letting her walk in by herself. I hadn't realized that there are teachers at each corner of the hallways ... so when she got in the school they could watch

Another area where I'm giving her some freedom and independence is in the morning leaving the house for school. She opens the door to go to the garage, pushes the garage door opener, opens the front passenger side door to put her back pack in, opens her door, gets in her seat and puts her seat belt on. She does all this while I run upstairs to get Lucas, who is usually sleeping. This seems like something so small and insignificant, but for us (her and me) it's not. I have to trust her that she's going to do all those steps and not get distracted and start playing with something in the garage or something!

Although there was an incident last month that reminded me she still can't have too much freedom! I took the kids to a kids fest-type thing on base. It was outside at the Youth Center, next to the playground. After walking around at some of the booths she was chomping at the bit to get to the playground so I finally let her go. Lucas was still playing some of the games at the booths. I tried to relax and look up at the playground every few minutes figuring she really wouldn't leave the playground. But she did. I didn't see her, didn't know which way she went, didn't know where to even look for her. Finally I found her at the food area. She was sitting at a picnic table gulping down a drink with a plate in front of her. A plate with a hot dog in the bun and a bag of chips. I don't know how she got the food and drink because I had our tickets. Thankfully she hadn't started eating yet (since she can't have wheat, not sure if she would have eaten the bun or not) and thankfully the chips weren't the Sun Chips that I saw some people eating (they contain wheat).

That was just another reminder to me of why I have and do hover over her ... I just never know what she's going to do next and 9 times out of 10 she doesn't come find me to tell me!

Learning to slowly let go though, and give her some independence isn't the easiest thing to do, but I'm trying!

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Patriots Point

Penulis : Unknown on Friday 20 May 2011 | 11:41

Friday 20 May 2011

One of the final places we visited using the Be A Tourist pass was Patriots Point. It was one of the few beautiful weekends we had in January and we really enjoyed our visit there.



Before we went on to the aircraft carrier USS Yorktown we descended into the depths of a submarine - the USS Clamagore. I've never been in a submarine before and I can confidently say that life isn't for me!








Attempt at a photo op didn't work out so well, there were too many thing to look at out on the flight deck!




Can you imagine sleeping in these cots?


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Around The Pond

Penulis : Unknown on Wednesday 18 May 2011 | 11:51

Wednesday 18 May 2011

We have a pond behind our house where we regularly see ducks, geese, turtles, fish, egrets, and herons.

The kids have enjoyed watching the wildlife and feeding the ducks and geese when we have some bread.


This picture makes me laugh, because the first thing I thought of when I took it was: Duck, duck, duck, duck, duck, GOOSE! Kayla and Lucas love playing that game.

About a month ago one of our neighbors pointed out a tree across the pond where a goose was nesting.

We would keep an eye on the pair of geese as one sat on the eggs and the other stayed close by in the pond. Sometimes the one on the nest would get in the pond for a little bit and you could see how protective they were of the nest if any ducks or egrets or herons got too close.

We eagerly anticipated some goslings to soon join them in the pond.

Finally, a couple weeks ago, the 5 babies were spotted at the edge of the pond. So exciting! I grabbed my camera and we walked around to the other side of the pond to get a closer look.


 

She looks like such a proud mom!
 

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Down Syndrome & Buddy Cruise

Penulis : Unknown on Tuesday 17 May 2011 | 18:21

Tuesday 17 May 2011

Last year I posted about the Buddy Cruise, which happened right after the NDSC Convention in Orlando ... and how I really wanted to go.

If you haven't heard of the Buddy Cruise (a not for profit organization) their mission is "To provide educational opportunities and resources for families, while promoting awareness, acceptance, inclusion and advancement for individuals with Down syndrome through unique venues."

One of these years I'm determined that our family will go on a Buddy Cruise. Joe and I took a cruise for our 1-yr anniversary and had such a fun time. We want to cruise again and taking our family on the Buddy Cruise sounds like such a great opportunity. I think we'll wait a few years for the kids to not only be able to really enjoy it, but to remember it as well.

Buddy Cruise recently produced a video on Down Syndrome and the Buddy Cruise: Family, Education, and Lifetime of Memories.

I loved what one self-advocate had to say about Down syndrome, "Down syndrome is like cake with extra sugar. It's still a cake, just sweeter."



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Joys & Challenges of Marriage

Penulis : Unknown on Sunday 15 May 2011 | 19:29

Sunday 15 May 2011

A friend of mine who lives in TX sent me an article about a Dallas-area couple who are married, and both have Down syndrome.

It's an insightful article about their relationship and how it came to be - they met at the annual National Down Syndrome Convention - so neat! It's also a beautiful love story and learning to live with another person and all their idiosyncrasies.

The only part of the article that really disappointed me was about, basically, early intervention. It talks about how Austin's mom took him to Seattle "where researchers in the Experimental Education Unit at the University of Washington were trying to prove that babies with Down syndrome could learn far more than anyone had believed. They helped her teach him to crawl, then walk, then talk." So far, so good. How wonderful that those researchers believed in the potential of people with Down syndrome and wanted to prove they were capable of so much more than society thought at that time.

Then the writer goes on to say: "The average baby needs only marginal parental guidance to learn those basic tasks. But children with Down syndrome ... must be dragged through their early development. It is tedious, pain-staking work."

I hate for this paragraph to take away from the rest of the article, and what the article was really about and represented ... but, 'dragged through their early development' ... really? I've never heard any parent who had their child go through Early Childhood Intervention (ECI) describe it as being 'dragged.' They just receive therapy - that's all it is - therapy! I also wouldn't describe it as 'pain-staking' work either; at least that wasn't my experience with Kayla's ECI (now IEPs are another story! ha!)

Besides that little blip in the article I enjoyed reading about this couple, their courtship, and their married life.

There is a great photo gallery of this couple and my favorite picture is this one of them preparing popcorn to take to the movies ... it just struck me as something so completely typical! How many of us have done that exact thing!?


This picture made me laugh:

(Pictures by Andy Jacobsohn/Staff Photographer).

I wish this couple many wonderful years together!

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