Day 21 Giveaway: Love on the 21st Chromosome

Wednesday, 31 October 2012

The world can be a small place, and the Down syndrome community even smaller.When Kayla started attending the school she was at the last 2 years, her classroom was across the hall from the reading specialist. Unfortunately she is the reading specialist f

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I Sometimes Feel Disconnected

Wednesday, 31 October 2012

Sometimes I feel a disconnect from the Down syndrome community in the way I feel, or describe, Kayla having Down syndrome.I don't say, or believe, that Kayla (or "kids like her") is a special angel sent from God, nor that she is a gift from God because s

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No Miss Gaga, these are MY monsters.

Wednesday, 31 October 2012

Oh hey, it's Halloween or something like that today, right?Yes, it's absolutely true, I used to be one of those girls who ho it up for this special occasion. Lady bug, girl scout, fireman... I could continue to list the messed up things I found a wa

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Day 20 Giveaway: From Grief to Celebration

Tuesday, 30 October 2012

Margaret (Gary) Bender blogs about life with her daughter, Alex, at The Ordinary Life of an Extraordinary Girl. Her blog is one of a few that I follow that is about life with an older child who has Down syndrome. I sure do appreciate reading about Gary's

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Domestic Violence: My Story

Tuesday, 30 October 2012

It seems that any other awareness campaign that happens in October gets overshadowed by Breast Cancer Awareness. I don't know of all of the awareness campaigns for October, but I do know besides Down Syndrome Awareness, it is also Domestic Violence Aware

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Two anxiety ridden Maltese and one adjusting mama.

Tuesday, 30 October 2012

So, I'm still adjusting to this new 1 bedroom apartment thing and so are the dogs.Yesterday I introduced my little Princess Palace to the tech savvy world of cable and internet, which basically means that I'm a citizen of America again. Thank the good lo

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Proclamation 5252

Monday, 29 October 2012

A brief history about National Down Syndrome Awareness Month...and a picture of my reason for recognizing October as Down Syndrome Awareness Month:October was first designated Down Syndrome Awareness Month by the National Down Syndrome Society in 1981. I

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Day 19 Giveaway: Pillowcase from Sarah & Joyce

Monday, 29 October 2012

Joyce and Sarah are a mother-daughter blogging/sewing team. Sarah is a young adult who has Down syndrome and Joyce, is her mother who also blogs at JEllen's House of Fabrics.They are both business-savvy ladies who opened their own quilting store in which

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The weekend I boozed because I moved.

Monday, 29 October 2012

Oh hey there, my loves! It's Monday, if you were unaware, and I feel like I got beat up this weekend.Much to the disappointment of you haterade drinkers out there, I did not get beat up. I spent my weekend moving, drinking, moving, drinking, unpacking an

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Down Syndrome Education for Med Students

Sunday, 28 October 2012

Dr. Julia Kinder, who is a family practice physician, and has an 8-year old daughter with Down syndrome, created a petition to require complete education on Down syndrome for 3rd year medical students. After her experience of going through medical school

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National Down Syndrome Registry

Sunday, 28 October 2012

The Global Down Syndrome Foundation just released the information that the National Institutes of Health is establishing a National Down Syndrome Patient Registry. This is pretty exciting news as there is nothing like this for the Down syndrome community

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Perfect

Saturday, 27 October 2012

ESPN has a segment called E:60 that gives you a behind-the-scenes look at a story they're reporting on.They recently had an episode titled "Perfect." The description: "There was a time when Heath White chased perfection. E:60 s Tom Rinaldi tells the sto

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Day 18 Giveaway: The Politics of Down Syndrome

Friday, 26 October 2012

The Politics of Down Syndrome by Kieron Smith is a book I've been wanting to read since I first heard about and am glad to finally have the opportunity to read it. It is definitely not your usual book on Down syndrome; nor is it even a memoir about Down

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The Judgment of Bartenders

Friday, 26 October 2012

So lemme tell you 'bout my best fran .... See?  Best frands.I'm just kidding sillies, we aren't really Rob and Big.My chesties aren't as voluptuous as Big's. Duh.***************Oh heyyyy everyone.  I'm Tyler from Arkansassy.While my R

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"Diary Of A Valedictorian"

Friday, 26 October 2012

"Diary Of A Valedictorian"Only want to leaveIf I can get far away.I'm on par today.System running well.Had to dodge hellOn the way to occupation.He who rules a nationMust contain the infestation.No more lent to clues;So in other news,I just stripped the taxesFrom my daily dues.Praise to him forever

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Day 17 Giveaway: Taurini Designs

Thursday, 25 October 2012

Kristy Yawman is another talented young artist who has Down syndrome. Taurini Designs was started by Kristy and her sister Stacy. Kristy's art is important in her life because it helps her express her inner feelings and makes her feel peaceful and calm.K

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Yes, I still drank the overly sweet red wine.

Thursday, 25 October 2012

Oh hey, who went home yesterday and tested out quotes from my post yesterday?  Just me? It's cool, I needed it. Yesterday kind of sucked.Today I'm going to participate in a little link up because I'm moving tomorrow (!!!!) and I just feel like it.&n

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Day 16 Giveaway: Furnace Hills Coffee

Wednesday, 24 October 2012

Dave and Louise Baldwin were brainstorming ideas about what their daughter, Erin, who has Down syndrome, could do in the way of employment. It's no secret that there is a high percentage of people with disabilities who are either under or unemployed. One

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We should call me "drunk".

Wednesday, 24 October 2012

With Halloween rapidly approaching, I feel today is a great day to make my own personal list of things drunk girls say. What does this have to do with halloween? Well, I don't know about you but I associate drinking mass amounts of alcohol with this

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"Suicide Beneath The Sky"

Wednesday, 24 October 2012

"Suicide Beneath The Sky"Held hands with hopeWhile forewarned by fateThat the sky would be falling.I ignored the warnings.It all crashed around us.Stubborn heart.Foolish mind.Had to leave my hope behind.Lodged within the rubble.Said that she was trouble.Nothing was more absurdThan her dieing words.

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Day 15 Giveaway: Monica & David Documentary

Tuesday, 23 October 2012

Today's giveaway is a DVD of the documentary featuring Monica & David.I saw the screening of this film at the NDSC Convention in Orlando . The film really made me stop and think about Kayla's future ... and the things we need to be doing to prepare

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Letters to My Teenage Self

Tuesday, 23 October 2012

From time to time I follow in the footsteps of popular post topics and today is going to be one of those times.This weekend, while I was throwing away going through a good portion of my possessions, I found some old photos of myself which triggered the l

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My meatball and my Quail Man.

Monday, 22 October 2012

Oh, hey there!I'm about 5 hours later than I prefer to post but I'm finally posting so boom.Seems I actually have to work extra hard this week since I'm taking Friday off for my big move to the Princess Palace! Enough excuses on my fashionably late

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Day 14 Giveaway: Corbin-Smiles Artwork

Monday, 22 October 2012

Corbin Chanter is a young adult with Down syndrome who has a passion for acting and dreams of becoming a movie star.Corbin is also a talented artist who has sold pieces all over Oregon. His artwork is fun, bright, colorful and makes me smile looking at i

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