Ten Years In

Thursday, 31 October 2013

I've been doing this for ten years now.I've been a parent to a child who has Down syndrome for ten years. A decade's worth of experience, yet I feel like I have no great wisdom or advice to give.I experienced the roller-coaster of emotions upon realizing

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I'd Rather Celebrate My Birthday

Thursday, 31 October 2013

It's Halloween today and aside from bear wishing me a happy Halloween this morning, followed by a "here's to many more happy Halloweens together", I think it's safe to say I'm not feeling festive in the slightest.  While I realize I blew a lot of yo

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Politely Cutting the Line

Wednesday, 30 October 2013

About a month and a half after school started we had a special-review IEP meeting. We discussed how the accommodations and modifications were working out, went over her progress thus far, and in general see if there was anything else the school team coul

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My Face's Arch Nemesis

Wednesday, 30 October 2013

Over the course of the last two months, or so, my face has been that of a disgusting 13 year old, pubescent boy. Had to.I've honestly had the worst time with it and this is the first time in my life I've had to deal with anything of this n

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Not Suffering From Down Syndrome

Tuesday, 29 October 2013

There was a discussion today on FB over a comment saying that people with Down syndrome suffer.The reference to suffering from Down syndrome is seen in articles (the last 2 paragraphs) and websites describing the condition.Here is the thing though: Down

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UBS mais saúde para Sarandi .....................

Tuesday, 29 October 2013

 Hoje ao chegar em casa me deparei com esse panfleto informativo , levei até um susto e comecei a achar que esse o Papai Noel vai trazer presentes para mim. Como vão fazer todas essas UBS(Unidade Básica de Saúde)  se não tem médicos p

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21 Life Experiences

Monday, 28 October 2013

21 life experiences that Kayla has had. Some of them are big life experiences (becoming a sister! flying to another country!) and some of them are little things (going sledding after a blizzard!) but they all add up to enjoying life, living life, and e

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Meet Nancy - My Alter Ego

Monday, 28 October 2013

I'm alive, I'm alive! I made it to class blog today despite what my alter ego, Nancy, who decided to come out in full force yesterday, had in mind.You see, Nancy is one crazy little bitch. She thinks taking multiple (ie. more than four) shots of $2 tequi

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Royal Fairytale Ball

Sunday, 27 October 2013

We have taken the kids to a few plays at Creative Spark Center For the Arts and they have really enjoyed them. They are close to the action and the cast involves the crowd in parts of the play.I saw they were having a Royal Fairytale Ball and the whole f

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Endlessly Beloved

Sunday, 27 October 2013

Happy weekend, my friends!Today I'm introducing you to Brianna from Endlessly Beloved. This girl's got a ton of heart and a lot of experience in long distance relationships, for those of you looking for advice in this area, Brianna's your girl!!Check out

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Down Syndrome Cognitive Test

Saturday, 26 October 2013

When you enter the land of IEPs you'll find your child having to go through a number of tests and evaluations. These are to determine which one of the 13 categories the child falls in to be eligible for special education services. In some states and scho

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Boogie Board

Friday, 25 October 2013

I don't know what it is about this Boogie Board, (sorry, link fixed!) but Kayla loves it.It's not electronic, it's not battery-operated (there is a sealed watch battery that never needs replacing), there are no apps for it, no cartridges for it, no on-of

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Don't Take Me Seriously

Friday, 25 October 2013

Sometimes I get comments that really rub me a weird kind of way. Not even necessarily rude or snarky comments, because typically those give me a good laugh, but the kind of comments where I can tell someone just really doesn't get my sense of humor or th

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Impressed With Her Flexibility

Thursday, 24 October 2013

Kids with Down syndrome can be extra-flexible. I think this is a result of having low muscle tone/loose ligaments.When Kayla was a baby/toddler people would often comment on her flexibility. I'm talking about being able to raise your legs straight up in

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